My Family

My Family
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Saturday, June 18, 2011

Toddler Tornado goes home

We had a really fun couple of days with Toddler Tornado.  He has autism and his mom and dad have done an excellent job helping him deal with this confusing world.  It wasn't difficult taking him out places because they've done the difficult job of teaching him to hold your hand when you are walking places.  As long as he held my hand he did a great job of behaving himself.  Every once in awhile he would drop my hand and slowly edge his way further and further away from me.  As he "escaped" he would begin to get over excited and start acting "silly".  It seems as though the hand holding just helped him keep his act together, so to speak.

Probably the biggest battle we had was getting him to eat.  His food choices have become increasingly more restrictive.  He really hadn't eaten anything all day on Thursday and we wanted to be sure he didn't wake up in the middle of the night hungry.  His mom and dad brought steak for him and after cooking it we offered it on a fork, but he wouldn't have anything to do with it.  Finally Mark offered it with the tongs he had cooked it with.  That he would take and he ate it all.  His parents told us he had several forks at home that he favored as well.  Who can know why he has issues with utensils, but he does.

These are the kind of behaviors parents of kids with autism deal with every day.  They can be overwhelming to deal with, or you just realize it's just the way it is and it becomes part of your "normal".  Our daughter Callie deals with many sensory issues as well.  Today it started raining.  She has such an intense fear of lightening and thunder that she climbed into bed and covered her head hiding from what the rain might bring.

I've gotten the impression that some people look at the adjustments we make for Callie and those that are made for Toddler Tornado and think we may be "spoiling" them or giving in to them.  They simply don't understand how deep these issues are - sensory or otherwise.

 I know I had fears as a kid, still have them, but never debilitating enough to hide in my bed.  She is my hero every day that she gets up and deals with a world which often presents itself to be a very scary place for her.  My grandson is my hero as well as he is living in a world that often perplexes him in ways I don't understand.  He begins extensive therapy next week and I'm so excited to see how he progresses as I know he will.  They are over comers - every day that they get up and live in a world which I find easy to navigate, but is often completely baffling to them.

Every time they allow me to take a peek into how they experience the world it's a privilege.  How blessed I am that they are a part of my life.

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