My Family

My Family
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Showing posts with label RAD. Show all posts
Showing posts with label RAD. Show all posts

Thursday, March 25, 2010

New to me


Over the past month Jacob has been tested thoroughly by school. He is coming upon his 7th birthday at which time the school must officially "label" him. His previous label was DD or developmentally delayed which Mark and I have disagreed with due to his incredible ability to verbally express his emotions. We have 5 other children that truly fit the DD label and none of them are as capable of expressing themselves as he is. Frankly, I don't think I'm as in touch with my emotions as he is. Not even sure I want to be.

The official label is now SLD - specific learning disability. This is determined by a gap between his intellectual level and performance in school. Was no surprise to me, but it is new to me. Although Conor likely would have received a similar label, we were homeschoolers at the time and did not have him formally tested. So, it is our first foray into the LD world of school.

Last week Mark and Jacob spent the day at the zoo. Mark was a little skeptical of taking him as the last visit ended poorly as Mark had to carry Jacob out from the bowels of the zoo to the parking lot with Jacob kicking, hitting and screaming at him the whole way. Ella was along and humiliated as well as angry that their zoo time was cut short. However, this trip was a great father son time and Mark thoroughly enjoyed it. When they walked in the door the first words out of Jacob's mouth were - "I was bad" - which was said at the same time Mark was raving about what a great time they had. Since they were talking at the same time Mark didn't even hear Jacob and I chose to ignore it and praise him for all the fun they had. This is one of the parenting hurdles with RAD - reactive attachment disorder - kids. We seem to be constantly trying to reassure him that he is lovable and awesome even when he is acting most unlovable and unawesome.

Mark told me later that he asked Jacob what animal he would most like to be. "A turtle," he said, "Why a turtle." "Because I could go into my shell for protection." Whew - he is so very transparent, which is helpful, but also makes me so very sad. How do you convince a wonderful child that he really is wonderful - warts and all? All I know to do is to keep reassuring him with the same kisses good night we always have - Mama loves you, Daddy loves you, but most of all - Jesus loves you. How very grateful I am that that is true and hopefully Jacob will some day believe it to the very depths of his soul.

Sunday, May 10, 2009

Mother's Day Miracle 2009


The word miracle is sometimes used pretty flippantly, I think, and yet there is such a thing as an "everyday" miracle. What happened yesterday is becoming more and more of an everyday miracle to us. Our Callie was given the name Myrikle - yes that is how it was spelled by her birth mother. We thought the name would be a burden, the spelling alone for a kid with developmental delays, and just a bit pretentious. But as the years have passed we realize our Callie's original name may very well have been divinely given to her and a glimpse into what we would experience as time has moved on.

Yesterday morning my beloved husband let me sleep in, a rare experience around here for sure. As he was rushing around to get the various breakfast orders filled he noticed Callie eyeballing Jacob's new art kit enviously. He coaxed Jacob to share some paper with her and he graciously did - wait that may be the second miracle of the day. Anyway, he went out into the kitchen and when he returned Callie proudly showed him a mother's day card - Happy Mother's Day Love Callie Reeves and on the back it says - to mom. Mark couldn't wait for me to receive it, he just had to tell me.

"Did you ever think you'd see the day?" he asked. No we sure never did. Our beautiful girl was pretty damaged merchandise when we got her. No eye contact, couldn't stand to be held - pretty much a RAD (reactive attachment disorder) kid from the get-go. She wasn't walking, talking, she didn't even make a sound as she'd learned that crying didn't get you any attention anyway, so why bother. She had what is called a "flat affect" which basically means no expression.

Today she danced in front of our church, as she does every week, singing praise songs to the Lord and pretending to hold a microphone singing along with the worship team. It just never ceases to amaze me to see this joyous child jubilantly dancing. Sometimes we wonder if it annoys other people, as she usually at least once bolts and trys to get up on the stage. As of now, I can't imagine a time every stifling her spirit. She nearly had it snuffed out her first 2 1/2 years. For whatever purpose, God didn't allow that to happen. Because of that, I believe,  she most certainly is a divine miracle, no everyday miracle either,  no matter how you spell it.